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Events
Awareness Week   

14-20 September is Global Mitochondrial Disease Awareness Week
 
Across the globe the week will be marked with various educational, fundraising and advocacy efforts all designed to raise awareness about mitochondrial disease..
Having mitochondrial disease is like having a massive power outage within your body.
All cells in the human body have mitochondria. They are the ‘power plants’ that provide the body with all of the energy it needs to walk, talk, laugh, hear, digest food, and breathe.
 
When a person has mitochondrial disease, it means that the power plants in their cells are not working properly. It also means that they could suffer a ‘power failure’ in the organ systems that sustain life. In some cases, mitochondrial disease is fatal.
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Source:http://www.gmdaw.org/about-mito.htm
Rare Disease Day   

 Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.
 
1= Rare Disease Day in India was celebrated for the first time in India on February 28th 2010 held at Sir Gangaram Hospital in New Delhi.
 
2=.2nd Rare Disease Day on 28th February 2011 held at Kamaraj Memorial Hall Chennai ,
 
3=3rd Rare Disease Day on 29 February 2012 held at Nehru Science Centre, Mumbai,
 
4=4th  Rare Disease Day  on 28 February 2013 held at  Maulana Azad Medical College, New Delhi.
 
5=5th Rare Disease day   on 28 February 2014  was celebrated in India at many city like  Bangalore, New Delhi, Mumbai, Chennai, Jaipur, Kolkata, Calicut, Kasangadu, Hyderabad.
 
6=6th  Rare Diseases Day 28 Feb  2015, Rare Diseases Day  was celebrated  in India in many city like   Jaipur, Delhi, Bangalore, Mannankadu, Hyderabad, Chennai,
 
7=7th, Rare Diseases Day   29 Feb was celebrated  in India in many city like   Jaipur, Delhi, Bangalorecalicut. GUNTUR,CHENNAI .
 
 Source.http://www.rarediseaseday.org/events/world &http://www.lsdss.org/

 ON Rare Diseases Day -28 Feb-2017
 
MERDIndia Celebrate Rare Diseases day on 27 Feb2016 Monday at  hotel Lord Plaza Jaipur with parents meet ,15 suffering parents well attended the event   
 
 
 
 
 
 
Rare Disease Day

World Down Syndrome Day

DNA DAY

Awareness Week

IEM DAY

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