MERD India Foundation | Newsletter Summary
August 2026 Updates
Provided informative support to approximately 15 people regarding newborn screening and inborn errors of metabolism
23rd August 2026
Participated in and supported the Continuing Medical Education (CME) seminar on "Multispeciality," hosted by the IMA Mumbai Branch and IMA CGP Mumbai Sub-Faculty at IMA House, Haji Ali, Mumbai.
During the dedicated session on "Genetics and Genomics: New Era of Healthcare," addressed the gathered medical professionals alongside Dr. Hema Purandare on the critical necessity of Universal Newborn Screening (NBS) and early diagnostic intervention for Inborn Errors of Metabolism (IEM) and rare genetic disorders.
Key Points Highlighted During the Speech:
Need of the Hour: Emphasized why early detection through universal newborn screening is vital to preventing irreversible physical and neurological damage in newborns.
Role of Healthcare Providers: Encouraged pediatricians, obstetricians, and general practitioners to actively integrate NBS protocols into routine postnatal care.
Advocacy & Support: Reinforced MERD India Foundation’s commitment to bridging the gap between clinical genetics, parent support networks, and accessible dietary and therapeutic interventions across India.
August 15, 2026
On the occasion of India's 80th Independence Day, continued our awareness and advocacy campaign in Hyderabad by visiting Ankura Hospital, Prathima Hospital, and Shalini Hospital.
During the campaign, met with Dr. Srinivas Murki, Dr. Giridhar, and Dr. Mounica V. It was a deeply meaningful experience, and all the esteemed doctors greatly appreciated our ongoing efforts toward raising awareness and strengthening advocacy.
Positive News from Puducherry:
JIPMER has officially inaugurated a Newborn Screening Programme:
https://www.thehindu.com/news/cities/puducherry/jipmer-inaugurates-newborn-screening-programme/article71316528.ece