MERD India Foundation | Newsletter Summary
Welcome to the April edition of our newsletter. This month has been a powerful journey of advocacy, scientific exploration, and community support. From the cutting edge of rare disease research to the heart-warming stages of inclusive theater, MERD India continues to bridge the gap between medical advancement and patient care.
🔬 Advancing Research: The Future of In Vitro Models
9th April | Webinar hosted by ORDI
MERD India participated in an insightful session focused on the revolutionizing landscape of rare disease research.
Key Discussion: How advanced in vitro (human-cell based) models are transforming drug discovery, offering more accurate results than traditional methods.
Expert Panel: Led by Dr. Surat Parvatam (Humane World for Animals India) and moderated by Ms. Neeraja Reddy Malleda.
Impact: We provided informative support to over 20 individuals during this month .empowering our community with knowledge on the future of inborn error of metabolism and newborn screening awareness.
🎗️ Celebrating Resilience: 23rd Cancer Survivors' Day
25th April | Maharana Pratap Auditorium, Jaipur
Our representatives were honored to attend the 23rd Cancer Survivors' Day, hosted by BMCHRC. This event was a profound testament to the strength of the human spirit.
Event Highlights:
High-Profile Engagement: MERD India stood in solidarity with survivors and patients, reinforcing our commitment to oncology support.
Distinguished Guests: The event was graced by:
Chief Guest: Shri C. P. Radhakrishnan (Hon’ble Vice President of India)
Guests of Honor: Shri Haribhau Kisanrao Bagde (Hon’ble Governor of Rajasthan)
Special Guest: Shri Gajendra Singh Khimsar (Hon’ble Health Minister of Rajasthan)
Hospital Dignitaries: Navratan Kothari and Anila Kothari, among other esteemed leaders.
A Dual Observance: Participation coincided with International DNA Day, allowing us to highlight the vital link between genomic science and personalized patient care for both rare diseases and oncology.
🎭 Talent Knows No Bounds: 'Canterville' by Disha Foundation
5th April | Birla Auditorium, Jaipur
We attended an "incredible" performance of Canterville, a unique production by the Disha Center for Special Education.
This show featured a cast of "Special Stars"—children with diverse neurological and physical abilities. It was a professional, heart-felt performance that reminded us all that disability is never a barrier to talent. A huge thank you to the organizers for such an inspiring evening!
🗞️ Healthcare News: Mission ANMOL Expands
In a significant win for public health, the Delhi Government has expanded its Mission ANMOL newborn screening program.
The Growth: Annual coverage has increased from 1.5 lakh to 2.5 lakh infants.
The Goal: Early detection and management of congenital disorders such as hypothyroidism, heart defects, and hearing impairments.
The Impact: This expansion is a critical step toward improving long-term health outcomes for the next generation.
Our Mission: MERD India Foundation remains dedicated to providing a voice for the rare disease community and ensuring that medical innovation always meets empathy.