Recent Activities of MERD India
MERD India provided informational support to more than 30 people regarding Inborn Errors of Metabolism (IEM), Newborn Screening (NBS), and rare diseases.
August 30-31, 2025: Newborn Screening Awareness Gallery 🖼️
We organized a two-day newborn screening awareness gallery and were thrilled to welcome more than 450 visitors. It was also wonderful to see about 20 parents and their families participate. We are hopeful that we're on the right path to fulfilling our foundation’s mission of awareness, advocacy, and support for parents. We'd greatly appreciate any suggestions you might have on how we can improve our mission in the future.
August 23, 2025: Genetic & Metabolic Miracles Seminar 🧬
We participated in a seminar in Jaipur, titled "Genetic & Metabolic Miracles: Unlocking Treatable Disorders," which focused on advancing patient care. The event was organized by ISIEM Jaipur, IAP Jaipur Branch & NNF Rajasthan.
August 20, 2025: Rare Diseases Webinar 💻
We attended a webinar on rare diseases, a summit organized by FICCI in collaboration with NITI Aayog. Representatives from various parent advocacy groups, including ORDI, Cure SMA, and the Samyara Foundation, were also present.
August 15, 2025: Independence Day Event in Kolkata 🇮🇳
Representing the MERD India Foundation and Lion Club District 3233E1, we attended an Independence Day event in Kolkata. The program, organized by District 322B2, was a truly unique experience, highlighted by the "Freedom to Fun" activity for special children. The event was graced by Dr. Ratna Puri as the chief guest, and the ceremony was moderated by Dr. Dipanjana Datta.
Happy News from Abroad 🌍
Texas has added four diseases to its newborn screening test. The new screenings and medical advances are helping to get more babies diagnosed and connected to treatment earlier.
You can read more about it here: https://www.statesman.com/news/healthcare/article/texas-adds-disorders-newborn-screening-test-21014523.php