In Jan-2026
our mission to support children with Inborn Errors of Metabolism (IEM) continues to grow.
Welcome to our January wrap-up! This month has been a powerful blend of grassroots action and high-level medical education. From the narrow lanes of Jaipur to the cutting edge of CRISPR technology, our mission to support children with Inborn Errors of Metabolism (IEM) continues to grow.
provide informative support to arround 30 people
Ground Report:
provide informative support to arround 30 people
Reaching the Heart of Jaipur
Warmth and Melodies at Shyam Baba Valmiki Basti
January 30, 2026
We visited Gayatri Nagar Vistar (behind SMM Colony, Shipra Path) for a heart-warming outreach activity. We had the privilege of supporting 30 families, distributing 70 new woolen garments to keep children warm this winter, along with essential pen sets for their studies.
The highlight of the day wasn't just the distribution, but the spirit of the children. They moved us with beautiful Ram Bhajans and a powerful, collective recitation of "Hum Honge Kaamyab" (We Shall Overcome)—a fitting anthem for our shared journey toward health and resilience.
Empowering Students at Koro Ke Dhani
January 11, 2026
Earlier this month, under our signature "Healthy Children, Healthy Nation" program, we joined hands with the Lions Club Jaipur Adarsh Nagar. We distributed 100 boxes of pens and pencils to students in Classes 5–9 at Koro Ke Dhani, Muhana Mandi. Investing in their education is the first step toward a healthier, more informed future generation.
Knowledge Series: Expert Insights on Rare Diseases
This month, we prioritized learning from India's leading medical experts to better support our parent community.
Date Topic Key Speakers Insights
Jan 28 Urea Cycle Disorders (UCD) Dr. Gauri Krishna & Krishna Reddy Focused on early diagnosis and the evolving treatment landscape in India.
Jan 21 Metabolic Epilepsy Dr. Vykunta Raju & Dr. Jiny Nair Discussed how genetic metabolic blocks trigger seizures and the importance of targeted therapy.
Global Breakthrough: The Future of CRISPR
Aurora Therapeutics Emerges to Fight PKU
Exciting news from the world of science! Aurora Therapeutics has launched with $16 million in funding to develop personalized CRISPR gene-editing therapies.
The Goal: Moving beyond daily dietary management to direct genetic repair.
Initial Focus: Phenylketonuria (PKU), a metabolic disorder we know well.
The Vision: Founded by Nobel laureate Jennifer Doudna and Fyodor Urnov, the company aims to make "bespoke" (tailored) cures available for rare diseases that were previously thought too difficult to treat at scale.
https://cen.acs.org/business/start-ups/Aurora-Therapeutics-launches-develop-CRISPR/104/web/2026/01