Achievements
With 15 years of dedicated experience leading parent support groups in Jaipur, Rajasthan, MERD India advocates for newborn screening and awareness of Inborn Errors of Metabolism (IEM) across India. MERD India has provided informative support to over 20,000 individuals and helped diagnose more than 150 children, directly saving lives. Our outreach efforts—spanning seminars, round-table discussions, television, and social media—have reached an estimated audience of over 75,000 people.
Received best Commendation Award (Dr. Prathap C Reddy Philanthropy Award) from Global Association of Physicians in Indian Origin GAPIO on 18th jan 2025 at maysur
https://gapio.in/gapio-awards-2025/
Received Rare Star – Advocacy Leader Award in DNA Day 25th April 2024 celebration, Rare Star Awards ceremony, and the Patient Advocacy Group Meeting Organized by Organization For Rare Disease India at Bengaluru
https://ordindia.in/ordi-rare-star-awards/the-rare-star-awards-2024/
After MERDIndia campaign
FSSAI has initiated Diet4Life to help people understand about metabolic disorders.. It will provide a comprehensive platform to parents, Health care professionals and parent support groups to adopt the right approach towards Inborn Errors of metabolism (IEM) management.
In India many babies suffer from life threatening conditions of IEM, and treatment of these metabolic disorders require early nutritional and dietary intervention. In view of the seriousness of the issue, FSSAI initiated a unique platform for parents to find timely medical support and treatment. FSSAI has entered into a partnership with professional organizations, healthcare
professionals and corporates to address the challenge that plagues a small section of our society
https://eatrightindia.gov.in/diet4life/
https://fssai.gov.in/cms/diet4life.php
https://fssai.gov.in/upload/knowledge_hub/1385075b34be3d5828aDiet4Life.pdf
Rare Disease Policy
views were given during several meetings and also committee responsible for Rare diseases policy , Govt of India.
https://main.mohfw.gov.in/sites/default/files/Final%20NPRD%2C%202021.pdf
Newborn Screening and IEMS
Several Child care Centre mandatory New-born Screening as a program after MerdIndia Campaign.
many child care center start rare disease clinics , department of medical genetic ,child development clinic after merdindia foundation campaign .
