Activities

December-2024

20th December 2024 Participated in webinar focused on Head and neck Cancer Navigating Treatment Options: Locating the Right Path to Recovery organized by Patient Academy for Innovation and Research (PAIR Academy) and key speaker was Dr Priya Tiwari .

4th December 2024 Jaipur-on the way forward to healthy children healthy nation merdindia foundation along with lion club jaipur Adarsh nagar distributed 86 new woollens to newborns at gangori hospital jaipur.

30th November 2024 Participated and support to ICBD 2024 at Mg hospital jaipur organized by Mahatma Gandhi Medical College and Research Centre and give speech on Rare Diseases Advocacy and role of parents Advocacy Group.

21st November 2024 Inborn errors of metabolism day Organized with Apollo hospital, inborn Errors of metabolism day at bubnashwer Hotel crown, It was great successful seminar and around 32 medical professionals well attented the event, Excellent support by Dr Alok Shrivastava, Dr Debashish, Dr j p Pani, Dr Rk Joshi, Dr Megmala Sadukhan.

17th November 2024 Continue efforts of Advocacy of newborn screening Participated inindo Us rare Summit 2024 and Pariticipated Newborn screening Session in Indian Institute of science at Delhi.

9th November 2024 Participated in workshop on Healthy life style with smile with rare diseases patients at IHBAS Delhi, organized by Indian Rett Syndrome Foundation, IHBAS Delhi, ORDI, wonderful work by samir Sethi, Dr Sudha Bhattacharya, IHBAS Director Professor Rajendra Kumar and IHBAS doctors and few patients support groups, Excellent activity done. October 2024

27th October 2024 Participated in panel discussion as a panelist on Newborn Screening awareness organized by Amritsar Academy of Pediatrics and Indian Society of prenatal diagnosis and therapy, at government medical college Amritsar. Presents CME on Perinatology call सवादं September is newborn screening month

26th September 2024 Continue campaign for healthy children healthy nation on Newborn screening awareness month organized seminar at Murshidabad west Bengal with IAP, great support by dr Dipanjana Datta, Dr Bhola nath, DrShankar Dey.

25th September 2024 On Newborn Screening awareness month September, campaign with lion club jaipur Adarsh nagar for healthy children healthy nation and distributed Posters to bhandri hospital, metro mas hospital, Indus hospital and manglam med city hospital.

24th Sep 2024 Continue campaign for healthy children healthy nation ,we campaign along with lion club jaipur Adarsh nagar at monilake hospital, cocoon hospital and Narayana hospital and distributed Posters to gynecologist and Obstetrician and child care doctors, Thanks to Dr Manish Mittal,Dr Himani Sharma,Dr Mitul Gupta,Dr Priyanka Gupta,Dr Suman Raja,Dr Manju Aggarwal,Dr Meena Khilnani,Dr Seema Jain ,Dr Rajesh Pathak.. Dr Manju Goyal,Dr Usha Aggarwal .

22nd September 2024 Participated as a Panelist on The Power of Collaboration : How Multi stakeholder Partnership can drive efficient rare disease management on ISIEM 2024 Jaipur, Rajasthan.

20th &21st September 2024 Participated National conference of ISIEM 2024 organized by ISIEM AND IAP JAIPUR focused on IEMS-USHERING IN THE THERAPEUTIC ERA

19th September 2024 Jaipur -Participated ISIEM introductory meeting on Newborn Scenario in India and Participated as a panelist , Panel Discussion on SMA – A Rare of Hope (A Multi-stakeholder approach & way forward) at the Hotel Clarks Amer,

18th September 2024 campaign for healthy children healthy nation On Newborn Screening awareness month, we visited manu hospital, Sevayatan hospital, CKS and Manipal hospital jaipur, Thanks to Dr Shabnam,Dr Vandana garg,Dr Jyotika Singh, Dr Mohit Sharma and Dr Manisha Gupta for kind support.

17th September 2024 We visited SDMH, rungta and Hope hospital jaipur and distributed Posters and discussed about Healthy Children Healthy Nation to 14 doctors and happy to meet Dr S fayyaz from SDMH, thank to All respected doctors for support Dr Fayyaz Sahab,Dr Brinder Jeet Kaur,Dr Kusum Kalla,Dr Brijesh Yadav,Dr Anupam Chaturvedi,Dr Mini Bhargava,Dr Gunjan Agarwal,Dr Ashwini Gupta,Dr Prashant Mitharwal,Dr Kandla Sharma,Dr Anubhuti Bhardwaj and Dr Romit Jain.

16th September 2024 Continue campaign for healthy children healthy nation distributed poster on Newborn Screening, brest feeding and Kangaroo care at Forties, EHCC and Rajasthan hospital along with lion club jaipur Adarsh nagar, Thank you to Dr Poonam Upadhyay, Dr richa Vaishnav, Dr Savita Bansal, Dr sunila Khandelwal, Dr shaloo khakar, Dr Sharad Sharma, Dr Shyam sunder Sharma, Dr Veena Acharya, dr Shilpee Gupta, Dr Priyanka Gupta, Dr deep Khandelwal.

14th September 2024 On Newborn Screening awareness month we courier 482 Posters on Healthy Children Healthy Nation to jaipur gynecologist and Obstetrician Clinics with logo of Benifit of brest feeding, importance of Kangaroo care and Universal newborn screening.

10th September 2024 Distributed 20000 pamphlets on Healthy Children Healthy Nation at jaipur newspapers eg Rajasthan patrika, Danik Bhaskar, Times of India to promote Newborn Screening, Breastfeeding,Kangaroo care, it was very unique activity with lion club jaipur Adarsh nagar.

4th September 2024 we merdindia foundation along with lion club jaipur Adarsh nagar distributed poster on Healthy Children Healthy Nation at Surya Hospital Jaipur to not only gynecologist and Obstetrician but also child care doctors, Thanks to Dr Anju tali, Dr Deepak Shivpuri, Dr Alok Tyagi, Dr Vibha Chaturvedi, Dr natwar Parwal, Dr Rakesh Sharma.

25th August 2024 Participated in health awareness program focused on cardiac and endocrinology ,organized by lions clubs Jaipur Centre spine and jaipur friend ,key speakers were from Narayana Hrudayalaya Dr Ankit Mathur and Abhinav Gupta.

24th July 2024 Participated and moderate awareness seminar at Manipal hospital jaipur and topic was child hood cancer and adult cancer,organized by lion club Centre spine and few other Organization, key speakers were Dr Rohit Shukla and Dr Rohit jain.

2nd July 2024 Participated in webinar focused on Framework for Ayurgenomics in Rare Diseases, organized by IndoUSrare and key speaker was Dr. Manoj Nesari from the Ministry of Ayush, India. Dr mitali Mukherjee from IIT Jodhpur AcSIR, and Dr Seema Kapoor of Maulana Azad Medical College,and Dr. Reena Kartha from IndoUSrare leads the discussion. more then 70 people well attended the webinar 23rd June 2024 Bharuch- organized seminar on Healthy Children Healthy Nation and newborn screening at Rotri club Bharuch support by Rotarian Club and IMA Bharuch around 50 peoples well attended the seminar.

1st June 2024 Amritsar- Participated as a speaker on fogsi conference and give views on Newborn Screening/need to Hour, organized by fogsi with Annual update at Hotel Radisson blue, over 100 gynecologist and Obstetrician were well and the conference. Organized walk for Awareness for rare diseases and Newborn screening in Radisson blue hotel with unique Tree 🌳 पौधारोपण, Excellent support by conference organized chairperson Dr narendra Malhotra l

26th May 2024 Ahmedabad-Participated in CME focused on Genetics testing, Newborn screening and HPV Vaccination, organized by Indian Society of prenatal diagnosis and therapy and Ahmedabad gynecologist and Obstetrician society, key speakers were Dr Uday Pai, Dr Saurabh Dani, dr Alpesh Patel, dr Phagun Shah,at Dreams icon panchvati Ahmedabad.

19th May 2024 Agra-organized Healthy Children Healthy Nation seminar along with IEM support Charitable Trust host by Ujala Cygnus Rainbow Hospital Agra and support by IMA, meta, Smriti, AGOS, around 50 people well attended the seminar.

15th May 2024 Participated in webinar on Focused on mps diseases Awareness with panel discussion moderate by Dr sanjeeva, panelist were Dr Kaushik Mandal, Dr girish Katta, Dr Rajat Chopra, Dr Aditya Gupta, Dr Suman Gupta And Mr Manjeet Singh, opening remarks by Dr Ratna puri and closing remarks by Dr Sunita Bijarnia, over 90 people well attended the webinar. The key comments by patient Mr Sumair.

13th May 2024 Participated in webinar on NIPS (Non-Invasive Prenatal Screening): The Use and the Misuse key speakers were Dr. Prof. Narendra Malhotra and Dr. Veronica Arora.

8th May 2024 Thalassemia Day Jaipur-Participated in Thalessemia day program organized by south East Asia institute of thalassemia and Mg hospital jaipur at Auditorium Mg hospital jaipur.

25th &26 April 2024 Bengaluru-Participated in DNA Day celebration, Rare Star Awards ceremony, and the Patient Advocacy Group Meeting Organized by Organization For Rare Disease India ,in Rare Star Awards ceremony around 200 people well attended the program and in Advocacy meet around 21 parents Advocacy Group Participated l

2nd April 2024 Jaipur- Participated in awareness program on autism awareness day Organized by लिनेज स्वयंसिद्धा, Seth Nanu ram Nanki Devi Health and Education society and support foundation for Autism and development Disabilities.

30th March 2024

Coimbatore - Participated in seminar as a speaker on Challenges and Bottlenecks in Genetic Counseling Education/Training in India at Hotel gokulam park , over 100 Genetics Counselors well attended the seminar, Organized by Board of Genetic Counseling India.

3rd March 2024

Jaipur-organized unique symbolic Rare Disease Awareness Posters gallery at Kalaneri Art Gallery Jawahar Lal Nehru Marg,display 100 rare diseases Posters, over 115 people well visited the Awareness gallery, wonderful support by Organization For rare disease and other many parents Advocacy Group from India .

28th February 2024 Jaipur - Observed rare diseases day at Nirmal Vivek Special children school with magic show, over 100 Spacial children includes school Management was enjoyed the show ,8 members and 3 children also Participated.

25th February 2024 Kozhikode- Participated race for rare diseases Awareness at kozhikode beach freedom square, organized by Organization For Rare Disease India, over 100 people well attended the run 🏃‍♂️.

11th February 2024 Bikaner-organized seminar on Healthy Children Healthy Nation along with lions clubs bikaner and Jaipur Adarsh Nagar, IAP bikaner at lion Hall, key speakers were Dr Shyam agarwal ,Dr Priyanshu Mathur, Dr Vijay Laxmi Vyas, more than 75 people well attended the seminar.

24th January 2024 Participated in ISHG-2024 and attented Newborn Screening Session and rare disease policy in India Session at J B Auditorium at Ahmedabad Management Association.

17th January 2024 Participated in webinar organized by Akums Pharma regarding the rare disease Drugs to be taken forward, few other support groups also Participated

9th January 2024 Panjim Goa- Participated Purple fest at goa panjim and topic Invisible to visible Disabilities, organized by Anubha ji and team from cronic pain India and key guest was health minister of Goa shri Subhash Pai Desai ,more than 80 people well attended the program.

19th December 2023 Jaipur -We distributed 60 New woolens clothes at jklon hospital jaipur, great support by MS Dr Kailash meena and HOD Dr kusum devpura and team.

1st December 2023 Ratnagiri Maharashtra Organized seminar along with IMA ratnagiri on newborn screening awareness and well attented by ober 40 doctors , key speaker was Dr Heme purendra.

2nd December 2023 Sindhudurg Maharashtra Organized seminar on Newborn Screening awareness along with IMA and fogsi and well attented by over 50 doctors, seminar wkey speaker was Dr Hemea Purendra.

23rd November 2023 Participated As a stakeholder and Speakers on Rare Genetic Disease Research Summit-2023 (REDRESS- 2023) organized by ORDI, TGI and ICMR at inStem Building, NCBS Campus, GKVK post, Bellary Road, Bengaluru

19th November 2023 Inborn errors of metabolism day (21st November)

Merdindia foundation along with department of Pediatrics devision in Medical Genetics jipmer pondicherry support by IEM support Charitable Trust Organized IEM day at jipmer pondicherry mini Auditorium, More than 80 people well attended the program We focused to sensitization of Medical students , It was great successful seminar and all cradit goes to Dr reena Gulati and her team, Key speaker were Dr kuldeep singh from Jodhpur along with Dr Adhishivam ,great blessings by Dr Vikram kate, and Dr Thapa, It was best IEM day observed since 2011 Thank you jipmer pondicherry for support

6th October 2023 Jaipur-Organized activity along with lion club jaipur Adarsh nagar on service week Distributed 15 Nutrition kit and drawing combo kit to suffering child hood cancer children and unique magic 🎩 show , Excellent support by Dr lalit Mohan Sharma and Team.

September marks on Newborn screening awareness month

29th September 2023 Bhopal- organized Newborn Screening awareness seminar along with AIIMS bhopal support by IEM support Charitable Trusts,loin clubs bhopal district 3233 G-2 ,Jeevan deepti society, over 100 people well attended the seminar, venue was Auditorium AIIMS bhopal, key speakers were AIIMS Director bhopal, Dr Shikha malik, Dr Bhavna Dhingra, lion jp Johar, Shri Anil khare, Ms sarika modi, merdindia foundation parents ketan Pradhanand Gajanan udder.

19th September 2023 Continue campaign for healthy children healthy nation On Newborn Screening awareness month September,we done round Table Discussions with c k Birla Hospital jaipur, meeting organized by our member Ashutosh ji Basotia, and useful Discussions by all respected doctors about importance of newborn screening.

16th September 2023 Organized awareness programme along with IEM support Charitable Trusts at Yashoda hospital and Research Centre Ghaziabad, it was great seminar and well attented by 60 people, key speakers were, Dr Seema Kapoor, Dr Surender Singh Bisht, Dr Ranjana Mishra, Dr Alpana, Dr Aprana Tyagi, Dr Ashish parkash, and unique play by Mr Sagar Kharbanda and Team, seminar moderate by ms sarika modi.

8th September 2023

we disturubeted awareness Posters at j k loan hospital, mg hospital and Narayana hospital, thank you to Dr kusum devpura and team , Dr sudir Sachdeva, Dr Saurabh Singh, Dr Munish kakar, Dr lalit Mohan Sharma, Dr rajesh Pathak and Team In this awareness week we covered 28 child care centers includes more than 50 doctors Hopefully we are in right way to create awareness among doctors, Policy makers and Parents

7th September 2023 in series of campaign for newborn screening and child hood cancer month along with lion club Jaipur Adarsh nagar we distributed 14 nutrition kit for cancer suffering children in BMCRC and distributed poster in manipal hospital . thanks to jairam ji ,deepti ji and team , Dr aruna jain and dr Rahul for support .

6th September 2023 Continues campaign for newborn screening month we visited Mahila Chikitsalaya Sanganeri Gate and Dr Atul child care hospital jaipur and distributed awareness Posters, Great support by Dr Ramesh Choudary, Dr sunil gothwal and Dr varnit Shankar.

5th September 2023 Continues campaign for newborn screening awareness program and visited child Care Clinic, mg children hospital, jklon hospital, gangori hospital, janana hospital all in Jaipur, great learning experience.

4th September 2023 Continue of our observing Newborn Screening awareness month, we visited, Hope,cocoon,and cradle hospital , Excellent support and guidance by Dr joyti patodia, Dr jagveer Singh and Dr manish Mittal

2nd September 2023 Distributed awareness Posters for NewbornScreening awareness and Child hood Cancer awareness at KMS hospital, Uniyara hospital, Forties hospital, EHCC hospital, neo Clinic children hospital all at jaipur, wonderful support by Dr kuldeep Mohan, Dr Sanjay kulshraht,Dr satyen, Dr Sanjay Choudary, Dr Vivek Gupta, Dr SD SHARMA, Dr jai krishn Mittal.

1st September 2023 Jaipur-distributed awareness Posters at Baby lon hospital, neoton CDC, Surya Hospital, SDMH, wonderful support by Dr DhananjayMangal. Swati Ghate, Dr sitaraman, Dr Deepak Shivpuri, Dr natwar, Dr Rajiv Bansal.

15th August 2023 Participated 🇮🇳 day at Kolkata with special children, organized by IPSW, lion club Kolkata and support by many other Organization, unique program organized by IPSW, lion club Kolkata south and other Organizations, more than 200 people along with many children well attended the program, Dr Madhulika Kabra and Dr Dipanjana Datta was also present.

6th August 2023 Organized awareness program along with lions club jaipur Adarsh Healthy Eyes focused on eyes problem, more than 70 people well attended the program, Dr Anil Matai was the key Speaker.

22ND July 2023 Bhopal- Pariticipated in international conference and wor shop organized by VNS group of institutions and south Asian College SAC-ACCP at bhopal Radisson

5th July 2023 Participated in webinar Topic: Dr SS Agarwal Memorial Lecture Genome test invitation /A Miracle, Chief guest was Professor R.k. Dhiman and guest speaker was Dr Madhulika Kabra, organized by department of Medical Genetics SGPGI Dr Subha Phadke and Team.

13th June 2023 New Delhi-Participated in workshop 9n National Policy For Rare Diseases At India international Centre, key person were Dr swasticharan from government of India, Dr Pramod Kumar, Dr Neerja Gupta from AIIMS, Dr Mamata Muranjan from kem, Dr Sudha Bhattacharya and many PAG were there, workshop organized by Dakshama and Amravati Health Organization.

29th April 2023 Varanasi- Participated as a panelist on Neonatal Screening for prevention of childhood disabilities , on Ferto Genetics 2023, Varanasi at Hotel Clarks, panel discussion moderate by Dr Saurabh Dani and other panelist were Dr Uday Pai and Dr Niharika.

1st April 2023 Organized webinar along with IEM support Charitable Trust focused on hurdles of parents on Treatment and registration of Centre of Exelcellene, key speakers were Dr Annuja Agarwala,Dr Sheetal Mahamunkar, Dr Vaishali Madkaikar, special views also from Dr Aditya Gupta, more than 30 people well attended the webinar, webinar moderate by sarika modi .

27 March 2023 Jaipur-organized and distributed sensory items to specially needy children at umang school jaipur, Our few members was also there, umang school is doing wonderful, it was very well organized activity done by us Special thanks to our child veer to come

26th March 2023 Pune- Participated and support series of awareness program race for rare diseases Awareness organized by Organization For Rare Disease India more than 60 people well attended the program along with merd india foundation members at ANP UNIVERSE PUNE.

19th March 2023 Lucknow-Participated race for rare diseases Awareness at janeswar Mishra park organized by ORDI, Director SGPGI sir, Dr Shubha Phadke Chief Guests, key strength of event Mr Swami, SMA Group, Thalassemia Group, And Hemophilia Group and many brave family members. More than 100 people well attended the event.

12th March 2023 New Delhi-Participated and support Race for rare diseases Awareness at AIIMS Delhi more than 200 people well attended the program key Strength of event were AIIMS Director Professor M Srinivas, Dr Madhulika Kabra, Dr Ratna Puri, Dr Neerja Gupta. Mr Prasanna, Sarika Modi and many Respected doctors and patients support groups members.

5th March 2023 Kolkatta- Participated race for rare diseases Awareness organized by ORDI, more then 800 people along with parent, patient Participated in event ,key strength of event Dr Dipanjana Datta and Shikha ji Metharamani.

Ist March 2023 Participated in AOCN - Rare Disease Webinar focused on diagnosis and treatment .more than 50 doctors and Parents Advocacy Group was well attented along with Dr I C verma.

28th February 2023 New Delhi-Participated in rare disease day celebration organized by Dte.GHS,MoHFW in collaboration with CHEB, AIIMS, MMAMC New Delhi

26th February 2023 ASANSOL Organized Rare Disease Day awareness seminar along with IEM support Charitable Trust,Reborn, IAP Asansol at Odyssey Club Key Speakers Were Dr Anil Jalan, Deppanjna Datta, more than 50 people well attended the seminar. Participated Race for rare diseases Awareness organized by ORDI, Reborn at Odyssey Club Grounds.

19th February 2023 Kochi-Participated in ORDI race for 7, awareness run for rare diseases Awareness in India, few hundred people well attended the run along with children and few patients.

10th January 2023

Participated in webinar organized by IAP PUNE focused ON PERINATAL GENETICS AND Newborn Screening.

December 18, 2022 (Jaipur): We organized a Health Awareness Seminar at HCG Hospital along with Lion Club Jaipur Adarsh Nagar, Jain Social Group Rajdahni, and the Women Cancer Society. The seminar focused on cancer prevention, symptoms, and treatment, and included our signature campaign on Newborn Screening awareness. Key speakers were Dr. Jitendra, Dr. Sumita Jain, and Dr. S.K. Jain. Around 50 people attended the program.

November 2022

November 25, 2022 (Bangalore): We participated as a panelist, sharing views with child care doctors, policymakers, and researchers about the importance of Newborn Screening and rare disease awareness in the Indian perspective. The event was organized by ORDI and TIGS.
November 22, 2022 (Jaipur): We distributed 36 new woollen clothes to newborn babies and discussed Newborn Screening awareness and Inborn Errors of Metabolism (IEM) diseases with child care doctors at Gangori Hospital, Jaipur. The event received excellent support from Dr. Ramesh Choudary and team.
November 21, 2022 (Jaipur — IEM Day): We observed IEM Day at Mahila Chikitsalaya, providing 60 new woollens to newborns and discussing Inborn Errors of Metabolism with child care doctors. The event received great support from the hospital management, Dr. Sunil Gothwal, and Dr. Rinku Saini.
November 20, 2022 (Mysore): We organized Inborn Errors of Metabolism Day via a seminar, supported by JSS, IAP, ORDI, and the IEM Support Trust. More than 80 people, along with 9 parents and 4 children, attended the seminar. Dr. Seema Kapoor, Dr. Rohit Cariappa, Dr. Archana Bilagi, Dr. Pardeep, and Dr. Deepa Bhat were the key speakers.

October 2022

October 30, 2022 (Manipal): We participated as a speaker at the National IEM Metabolic Meet on the theme "Mitochondrial Cytopathies, A Miniscule Initiative." The meet was organized by the Centre for Excellence in Inborn Errors of Metabolism and the Departments of Pediatrics, Medical Genetics, and Biochemistry at Kasturba Medical College.
October 2, 2022 (Jabalpur): We organized a Child Health Awareness Seminar with Lions Clubs Jabalpur at Hotel Kalchuri. The Chief Guest was Jabalpur Collector Dr. Ilaiyaraaja T. More than 150 people attended the program.

September 2022

September 29, 2022 (Webinar): We organized a webinar with the IEM Support Charitable Trust on Newborn Screening Awareness, with the slogan "Newborn Screening: Growing Stronger." The webinar, dedicated to Newborn Screening Month (marked globally in September), featured many doctors who concluded that implementing Newborn Screening for treatable diseases like CH (Congenital Hypothyroidism), G6PD, HEARING, and CRITICAL CONGENITAL HEART DISEASE is a necessity in every childcare center. Key speakers were Dr. Ratna Puri, Dr. Saurabh Dani, Dr. Madhulika Kabra, Dr. Seema Kapoor, Dr. Shubha Phadke, Dr. Rohit Cariappa, Dr. Chaitanya Datar, Dr. Dipanjana Datta, Dr. Deepa Bhat, and Dr. Ankur. Despite poor network and technical issues, around 50 people attended the webinar.
September 27, 2022 (Jaipur): We organized an Awareness Meet with a press conference, along with parents, to observe Newborn Screening Awareness Month.
September 22, 2022 (Webinar): We participated in a webinar on the "Round Table Panel Discussion on Importance of Inborn Errors of Metabolism (Newborn Screening) - The Indian Context," organized by Synergy Medical Systems. Key panelists were Dr. Usha Deve, Dr. Priyanshu Mathur, Dr. Leslie Edward S Lewis, Dr. Suprava Patel, and Marine Bellefroid.
September 21, 2022 (Jaipur): We organized a Music Program, Food, and New Clothes Distribution Activity in association with Lion Club Jaipur and the MG Hospital Childhood Cancer Department at Kavita Cancer Care Home. Around 100 people, including parents, Lions members, and children, attended the program.

August 2022

August 27, 2022 (Jaipur): We organized a Health Awareness Seminar for Girls along with Lion Club Jaipur Adarsh Nagar, Jaipur Diamond, and Hope NGO at a senior secondary girls' school in Malviya Nagar. Dr. Neha Agarwal and Dr. Nitika Gupta were the key speakers.
August 14, 2022 (Jaipur): We organized a get-together with foundation parents at Lords Plaza Jaipur on the occasion of Azadi Ka Amrit Mahotsav. Ten parents and three children attended the program.

July 2022

July 31, 2022 (Jaipur): We organized a Healthcare Seminar with Fortis Hospital and Lions Clubs at Fortis Hospital. Dr. Pankaj Anand, Dr. Ashwin Sharma, and Dr. Sanjay Choudary were the key speakers.
July 1, 2022 (Mysore): We participated in the 7th Annual Hybrid Conference (International) at JSS Medical College, JSS Academy of Higher Education and Research, Mysore, Karnataka.

June 2022

June 1, 2022 (Jaipur): We organized a service activity to distribute new clothes to 78 newborn babies at Zanana Hospital, Jaipur. This was a combined effort by merdindia foundation and Lion Club Jaipur Adarsh Nagar.

May 2022

May 8, 2022: We participated in Thalassemia Day at MG Hospital Jaipur, which was organized by the South East Asia Institute of Thalassemia and MG Hospital Jaipur.

April 2022

April 28, 2022 (New Delhi): We participated in a seminar on the Launch of Pulse Oximetry Screening & Roll-out Plan for Streamlining the Management of Neonates and Children with Congenital Heart Diseases at the G. B. Pant Hospital Auditorium.

March 2022

March 22, 2022 (Webinar): We participated in the IndoUSrare webinar titled "Newborn Screening - The Indian Perspective," featuring Dr. A Radha Rama Devi and Dr. Arun K Singh. Dr. I.C. Verma, a pioneer of genetic diseases, also shared his views.

February 2022

February 27, 2022 (Jaipur — Rare Diseases Day): We observed Rare Diseases Day at Umeed Special Children School, Jaipur, with kind support from Lion Club Jaipur Adarsh Nagar. More than 40 people, along with children, attended the program, and we provided many items to the specially needy children. This was a very successful program for us.

December 2021

December 19, 2021: We organized a webinar with Lion Club Jaipur Adarsh Nagar and Lion Club Jaipur Maitrai on "Gastroenterology and Hepatology Problems in Children." Dr. Lalit Bharadia was the key speaker. December 18, 2021: We participated in a webinar on the "Role of Obstetricians in Newborn Screening." Speakers were Dr. Prakash Gambir and Dr. Saurabh Dani.

November 2021

November 21, 2021 (Inborn Errors of Metabolism Day): We organized a hybrid Seminar and Webinar with IEM Support Trust and ORD India in Kolkata at Conclave 216, Acharya Jagadish Chandra Bose Road. Key speakers were Dr. Ratna Puri, Dr. Arun Mangalik, Dr. Bikramjit Das, Dr. Sanjukta Das, and Dr. Dipanjana Datta. Thirty-eight people, including eight parents, were present at the seminar, and 56 people attended the webinar. November 15, 2021: We participated in an Advocacy Meet organized by NNF India in collaboration with UNICEF, IAP, and FOGSI. The Newborn Week Advocacy Day was held at the Hotel Pride Plaza, Aerocity, New Delhi.

October 2021

October 28, 2021: We participated in a webinar on the "Vital Pillar of Rare Diseases Policy and Enhancing Standards of Care," organized by the US India Foundation and PerkinElmer India. October 20, 2021: We participated in the India Rare Disease Summit virtual event, which focused on: NBS Policy and Global Perspectives Opinion on National Rare Disease Policy in India 2021

September 2021

September 30, 2021: We participated in a webinar focused on Inborn Errors of Metabolism, organized by Azzurra Pharma. September 26, 2021: We participated as a panelist in the National Newborn Screening Symposium organized by the National Neonatal Forum India (NNFI). The discussion was titled "The Way Forward (Newborn Screening: Towards a Uniform Screening)." Other panelists included Dr. Rohit Carriapa, Dr. Neerja Gupta, and Dr. Milind Shah. September 25, 2021: We participated in the Indo-German Metabolic Meet 2021 webinar, organized by Kasturba Medical College, Manipal. September 8, 2021: We participated in and supported the Newborn Screening Advocacy Meeting organized and supported by NNF INDIA, UNICEF, WHO, GOI, ISPAT, ISOPARD, ICT, and USAID. September 7, 2021: We organized a webinar on "Healthy Children" with Lions Clubs and ORDI. Keynote speakers from Jaipur were Dr. Rajesh Pathak, Dr. Satyendra Katewa, Dr. Swati Ghate, and Dr. Sharad Sharma.

July 2021

July 24, 2021: We organized a webinar with Lions Clubs Jaipur on "Healthy Children, Healthy Nation," focusing on Childhood Cancer and Newborn Screening. Speakers were Dr. Satyendra Katewa from Manipal Hospital and Dr. Rajesh Pathak from Narayana Hrudayalaya, Jaipur. July 5, 2021: We participated in a webinar on "Indian Contribution to Disease Gene Discovery," organized by SGPGI in memory of the late Dr. S.S. Agarwal. July 3, 2021: We participated in a webinar on the 6th Annual International Conference of the Board of Genetic Counseling. Link: http://miceideas.com/conference/BGCI2021/

June 2021

June 17, 2021: We participated in a webinar on "Neonatal Testing for Rare Diseases: The Power of Knowing." Link: https://view6.workcast.net/register?cpak=1001330958038291&referrer=Blast3&et_rid=79832673&et_cid=3809113

May 2021

May 29, 2021: We participated in the ORDI - AOCN Webinar Series - Session 6, titled "Linking Phenotypes to Diagnosis." May 22, 2021: We participated in a webinar on Thalassemia, organized by the Indian Dietetic Association Jaipur Chapter. Speakers were Dr. Rajiv Kumar Bansal and Surbhi Pareek (Dietitian and Nutritionist). May 15, 2021: We participated in the ORDI - AOCN Webinar: Mitochondrial Diseases (Session 4). May 8, 2021: We participated in the ORDI-AOCN Webinar on Metabolic Epileptic Encephalopathies.

February 2021

February 28, 2021 (Rare Disease Day): We participated in the Global Rare Disease Conference (GRDC) 2021, an initiative by the People to People Health Foundation and co-hosted by NITI Aayog.

We observed Rare Disease Day at Seth Anandi Lal Poddar Institute Of Deaf Dumb (सेठ आनंदी लाल पोद्दार मूक बधिर संस्थान), a special education school in Jaipur, Rajasthan. The organization donated bed sheets, drawing boxes, dal (lentils), sugar, fruits, and biscuits for 60 children.

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कश्ती रहती है हमेशा भंवर में 

आओ मिल कर किनारे पहुंचाये 

February 21, 2021: We participated in the News X television show via webinar, titled "Rare Disease: Indian Scenario." Link: https://youtube.com/playlist?list=PLDPE5u-MQ9P57eSNYf0Jnnp7rnm9VPiRH

February 20, 2021: We participated in a Virtual CME on LSDs in South Asia: Challenges and Priorities. The webinar speaker was Dr. Ashok Vellodi, Former Consultant Paediatrician, Metabolic Unit GOSH.

January 2021

January 22, 2021: We participated in the North Region Rare Diseases Consultation-2021 on the blueprint in India. Link: https://regionalrarediseaseconsultations.puertevisual.com/register/PPHF/NX5E5HMFS3LZGP0ZCQ6AAJ7MQ/

December 2020
 

December 20, 2020: We organized a webinar with Lion Club Jaipur Adarsh Nagar on "Healthy Children," covering common problems in children aged 0 to 18 years, such as fever, infections, migraines, cold, cough, pneumonia, skin infections, ear infections, and throat infections (strep throat). Key speakers were Dr. Deepak Shivpuri and Dr. Sourabh Sing.

December 4, 2020: We participated in the webinar "Neurological Disorder Genetics and Microbiome Perspective." Speakers were Dr. Manisha Goyal, Dr. Pawan Gupta, and Dr. S.K. Chikara.

November 2020
 

November 25, 2020: We participated in the ORDI Webinar on Global Garrod Day. The panel of experts included speakers Dr. Sumita Danda, Dr. Sandhya P, Dr. Joe Thomas, Dr. Tamil Selvam, and Dr. Isaac Jebaraj. Dr. Debashish Danda was the moderator.

November 21, 2020: MERD India along with the IEM Charitable Support Trust organized Inborn Errors of Metabolism Day via webinar. Key speakers were Dr. Anil Jalan, Dr. Anupam Sibal, Dr. Rohit Cariappa, Dr. Chaitanya Datar, Dr. Priyanshu Mathur, and Mrs. Geetanjali Kunte (Dietitian). Over 100 people attended the webinar. Recording of the event: https://drive.google.com/file/d/1WcK_4OgOeho4pBqA2wTFUUhJPiU5LXQh/view?usp=sharing

October 2020
 

October 26, 2020: We participated in the IAP webinar titled "Understanding the IEM Algorithm." Dr. Anil Jalan was the speaker.

October 25, 2020: We participated in the Indian Rett Syndrome Foundation webinar, which focused on Musical Therapy.

October 15, 2020: We participated in the IndoUSrare Webinar on "Rare Disease Patients Engagement with FDA." James Valentine, JD, MHS, Attorney at Hyman Phelps McNamara, was the guest speaker.

September 2020
 

September 27, 2020: We organized a webinar with the Indian Rett Syndrome Foundation and IEM Support Charitable Trust titled "Beyond Medicine and Diet for Rare Diseases." The discussion covered the need for Physiotherapy/Occupational Therapy and Behavioural/Psychological Needs of children with Rare Diseases like IEM and Rett Syndrome. Key speakers were Dr. Shashi Ranjan (Loknayak Hospital) and Ms. Auroba Kabir (Enso Wellness).

September 25, 2020: We participated in the webinar "Rare Disease Clinical Research: Challenges and Solutions to conduct studies in rare disease indications," organized by ORDI. Dr. Ali Smyth was the speaker.

September 20, 2020: We organized a webinar with the IEM Support Charitable Trust focused on sharing the experiences, views, and challenges parents face while caring for their children.

September 18, 2020: We participated in the webinar "Clinical Trials for Rare Diseases: What Patients and Caregivers Need to Know." Speakers were Capt. Smitha Naidu and Ms. Swetha Pradhan.

September 6, 2020: We participated in the IAPTCB 44th scheduled Zoom webinar on "Basic Approach to IEM in Children and Newborns" by Dr. Anil Jalan. Dr. Prajnya Ranganath moderated.

September 5, 2020: We participated in the ORDI Care For Rare Webinar titled "Battling for Genetic Counseling: The Promises and the Perils." Dr. Dipanjana Datta was the speaker.

August 2020
 

August 14, 2020: We participated in the webinar "Newborn Screening for Obstetricians: Awareness to Implementation - Part 3."

July 2020
 

July 24, 2020: We participated in the webinar "Newborn Screening for Obstetricians: Awareness to Implementation - Part 2."

July 11, 2020 (Evening): We participated in the webinar "IEM Mimicking Genetic Problems & Genetic Screening," with speakers Dr. Anil Jalan and Dr. Tejal Rishbud from Mumbai.

July 11, 2020 (Earlier): We participated in the webinar "Implementing Newborn Screening in Clinical Practice: Are we utilizing the full potential?" with speakers Dr. Chaitanya Datar and Vaishali Madkaikar from Pune.

July 11, 2020 (Morning): We participated in the ORDI Care for Rare Webinar on "Newborn Screening in Sick Newborns." Dr. Shamik Ghosh from Kolkatta was the speaker.

July 3, 2020 (Evening): We participated in the webinar "Newborn Screening for Obstetricians: Awareness to Implementation" as a panelist, alongside Dr. Ashish Mehta and Dr. Darshan Wadekar, moderated by Dr. Saurabh Dani.

July 3, 2020 (Earlier): We participated in the ORDI Care For Rare Webinar on Newborn Screening. The chief guest was Dr. Arvind Shenoy, a renowned Paediatrician associated with Cloudnine Hospital in Bengaluru.

July 2, 2020: We participated in the BGC India 5th Annual Conference 2020: Genomics to Mankind – Integrating Genetic Education, Counseling and Public Health.

In-Person Events
 

Lucknow: We participated in and supported Rare Disease Day, organized by the Department of Medical Genetics, Sanjay Gandhi Postgraduate Institute of Medical Sciences (SGPGIMS), at the Telemedicine Hall, SGPGIMS, on February 29, 2020.

Bangalore: We participated in and supported the Rare Disease Awareness Race organized by the Organization For Rare Disease India (ORDI) on February 22, 2020.

Pune: We participated in and supported the Rare Disease Awareness Race organized by the Organization For Rare Disease India (ORDI) on February 16, 2020.

Jaipur: We participated in a Workshop and Awareness Program on Rare Disease and LSD, organized by the Lysosomal Storage Disorders Support Society (LSDSS) and Santokba Durlabhji Memorial Hospital (SDMH) Jaipur, at the SDMH Auditorium on January 25, 2020.

New Delhi: We participated in the Foundation Ceremony of MISSION NEEV (Neonatal Early Evaluation Vision) at the Auditorium, Maulana Azad Medical College, on January 6, 2020.

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Nagpur-Organized IEM DAY with support by Nelson Mother and Child Care Hospital , NNF , IAP, on
24th NOV 2019 at Hotel Hardeo.

Jaipur: We observed Inborn Errors of Metabolism Day with Jaipur parents on November 21, 2019, at Hotel Park Regent.

New Delhi: We participated in a seminar on Rett Syndrome on October 12, 2019, organized by the Indian Rett Syndrome Foundation at Safdarjung Hospital, Ansari Nagar East, near AIIMS Metro Station.

Jaipur: We organized a Health Awareness Program under the Service Week of the Lion Club at Eternal Hospital on October 5, 2019.

Jaipur: We organized a Newborn Screening Awareness Program at C.K. Birla Hospital on September 25, 2019.

Varanasi: We participated as a panelist in the Newborn Screening Session of the ISAR ISPAT Conclave at Hotel Taj Ganges on September 21, 2019.

Indore: We organized an Awareness Program with Choithram Hospital & Research Centre, IAP Indore, and the IEM Support Charitable Trust on September 1, 2019, at the Auditorium, Choithram Hospital & Research Centre.

Hyderabad: We participated in the NeuroPedicon-2019 conference (specifically, the workshop on Management of Neurometabolic Disorders) at Hotel Park Hyatt on July 26, 2019.

New Delhi: We participated in the RGAL (Rare Global Advocacy Leaders) Meeting on April 16, 2019, at Four Points by Sheraton.

New Delhi: We participated as a panelist in the Seventh International Conference on Rare and Undiagnosed Diseases for Session 4: Role of Patients Group – Awareness and Education on Day 1, April 13, 2019, at Hotel Leela Ambience, Ambience Island, National Highway, Gurugram, Delhi NCR, India.

Jaipur: On the occasion of World Autism Awareness Day on April 2, 2019, special children from different institutions gave presentations at Albert Hall. This program was organized by the Department of Archeology and Museum, Government of Rajasthan, in collaboration with the D-Naj Institute, to raise awareness of autism.

New Delhi: We participated in the Rare Disease Awareness Run/Walk, "Race for 7," at IGIB Okhla on March 17, 2019.

Bikaner: MERDINDIA organized a unique symbolic mass awareness March for Rare Disease on March 3, 2019. This event was organized with IAP Bikaner, Lion Club Jaipur Adarsh Nagar, Lion Clubs Bikaner, and the IEM Support Charitable Trust. More than 100 people participated in the march, which began from Bhraman Path, Sadul Ganj Road, Shardul Colony, Bikaner.

Jaipur: MERDINDIA supported World Rare Disease Day by organizing the symbolic "Race for 7," a mass awareness run/walk, with Lion Club Jaipur Adarsh Nagar on February 28, 2019, at the Jawahar Circle Garden, Jaipur, Rajasthan. Over 70 people attended and participated in the run/walk for awareness.

Pune: We participated as a panelist for a discussion on "Care for Rare" during ISIEM 2019 on January 19, 2019.

New Delhi: We organized an event with the Division of Genetics, Department of Paediatrics, All India Institute of Medical Sciences (AIIMS), New Delhi, and the IEM Support Charitable Trust, New Delhi, on Saturday, December 15, 2018, at the All India Institute of Medical Sciences, New Delhi.

Ahmedabad: We organized a CME on "Inborn Errors of Metabolism-2018" in collaboration with the FRIGE Institute of Genetics, IAP Ahmedabad, and AOP Ahmedabad on Sunday, December 9, 2018, at the Ahmedabad Management Association (AMA).

Jaipur: We organized the 4th IEM Day event, including a press conference, on November 21, 2018, at the Golden Tulip Hotel.

Bangalore: An Awareness Programme for Rett Syndrome was held on October 14, 2018, at NIMHANS.

Jaipur: We organized an Awareness Program for Rare Diseases in Children in association with Surya Hospital Jaipur and Lion Club Adarsh Nagar on October 6, 2018, at Surya Hospital Jaipur.

Jaipur: We organized a Newborn Screening Awareness Program in association with Mahatma Gandhi Medical College & Hospital and Lion Club Adarsh Nagar Jaipur on September 2, 2018.

Jaipur: We participated in the 4th Annual CME Pediatric Gastroenterology, Hepatology & Nutrition at MG Hospital Jaipur on July 22, 2018.

Ajmer: We organized a CME titled "Rare Disorders / We Care for Rare" in association with IAP, FOGSI, and JLN Ajmer on June 30, 2018, at Hotel Cross Lane.

Patna: We participated in the FOGSI ISPAT Conference on Genetics & Foetal Medicine held at Hotel Lemontree Premier on June 17, 2018.

Jaipur: We hosted and organized the 3rd National Patients Advocacy Group Leader Meeting (PAG Meeting), called by the Organization for Rare Disease India (ORDI), on April 29, 2018, to discuss the National Rare Disease Policy.

Jaipur: MERDINDIA supported World Rare Disease Day by organizing the unique symbolic "Race for 7," a mass awareness run/walk, on February 25, 2018, at Shivaji Park, Vijay Path, Tilak Nagar, Jaipur, Rajasthan. More than 100 people attended and participated in the run/walk for awareness.

Bangalore: MERDINDIA supported World Rare Disease Day by participating in the "Race for 7," a mass awareness run/walk, on February 25, 2018.

Lucknow: The ACBICON 2017 conference was held on December 4, 2017, at the Scientific Convention Centre, King George's Medical University.

New Delhi: An IEM Awareness Program for the north zone (Delhi-NCR, Rajasthan, UP, Punjab, Haryana) was held on October 28, 2017, at the India Habitat Centre. The event featured the Diet 4 Life project, which was started by the Food Safety and Standards Authority of India (FSSAI), Government of India.

Bengaluru: The Newborn Screening Symposium-2017 was held on October 29 at The Grand Magrath Hotel.

New Delhi: The FSSAI marked World Food Day 2017 with the National Conclave on Nutrition Security: Partnership & Convergence at FDA Bhawan, New Delhi, on October 16, 2017.

Manipal: The Indo-German Metabolic Meet was held on September 24, 2017, at Dr. T.M.A. Pai Hall.

Pune: A session titled "Inborn Errors of Metabolism - Simplified for Practice" was held at Deenanath Mangeshkar Hospital on September 16, 2017.

Jaipur: The 9th Ped Gastro Update CME was held at the SDMH Auditorium on July 16, 2017.

New Delhi: A PAG meeting to discuss the National Policy for Treatment of Rare Diseases took place at The United Service Institution of India on July 8, 2017.

New Delhi: A National Initiative for Rare Diseases Consultation Meeting was held at the India International Centre on April 27, 2017.

New Delhi: The Inaugural Ceremony of IEM, a unique collaborative initiative with the medical fraternity, Food Safety and Standards Authority of India, nutritionists/dietitians, and industry to make special diets available for children suffering from Inborn Errors of Metabolism (IEM), was held on April 12, 2017, at the India Habitat Center.

Navi Mumbai: A CME on "Newborn Screening: Adding Quality, Changing Lives" was held on April 2, 2017.

New Delhi: We participated in and supported the 1st Saved Babies Day in India at the Auditorium, Maulana Azad Medical College, on March 28, 2017.

Ahmedabad: We participated in Rare Disease Day 2017 with the slogan "Join us in making the voice of rare diseases heard," held on February 28, 2017, at the Ahmedabad Management Association. The event was organized by FRIGEs Institute of Human Genetics and the Academy of Pediatrics Gujarat Branch.

Bangalore: We participated in and supported Race for 7, an awareness run organized by the Organization For Rare Disease India (ORDI), on February 26, 2017.

New Delhi: A meeting on Evolving Policies for Cure of Rare Diseases was held at Jawaharlal Nehru University on February 23, 2017.

Chennai: The IV National Conference of the Indian Society of Inborn Errors in Metabolism took place on February 12, 2017.

Bangalore: The 54th National Conference of the Indian Academy of Pediatrics (PEDICON 2017) was held on January 21, 2017.

Surat: A CME on Genetic Applications in Clinical Practice was held on January 8, 2017, at the Taj Gateway.

New Delhi: The 13th Biennial National Congress, hosted by ISPAT Delhi Chapter, was held at the Constitutional Club of India on January 15, 2017.

MERDindia Organized, Sponsored, Supported Events:

New Delhi: We organized the 3rd IEM Awareness Day and 2nd Saved Babies Day in association with Maulana Azad Medical College Delhi and IEM Support Charitable Trust Delhi on November 21, 2017.

Bikaner: We organized a CME with IAP Bikaner on "Newborn Screening and Inborn Errors of Metabolism in the Indian Perspective" on July 23, 2017.

Varanasi: We participated in and sponsored a CME on Inborn Errors of Metabolism at the Conference Hall, New Pediatric Building, Department of Pediatrics, IMS-BHU, on March 26, 2017.

Jaipur: We celebrated Rare Diseases Day at Hotel Lords Plaza on February 27, 2017.

Pune: We participated in and supported the Symposium organized by IAP-Pune on "Inborn Errors of Metabolism: A Clinical Approach" at the Bharati Hospital Auditorium on Sunday, November 27, 2016.

Jaipur: We organized the 2nd IEM Day Symposium in association with Neo Clinic Jaipur and Lions Club Jaipur on November 20, 2016.

New Delhi: An Awareness Meet for Rett Syndrome was held at Ram Manohar Lohia Hospital, Baba Kharak Singh Marg, on October 16, 2016.

Noida: A CME on Inborn Errors of Metabolism (IEMs) and Newborn Screening took place on September 15, 2016, at Jaypee Hospital, Sector-128, Wish Town, Gautam Buddh Nagar, Noida, Uttar Pradesh.

Hyderabad: The Newborn Screening Symposium-2016 was held at the Golkonda Hotel, Banjara Hills, on September 11, 2016.

Vadodara: We organized a CME in association with The M.S. University of Baroda and K.G. Children Hospital Vadodara, Gujarat, India, on "Inborn Errors of Metabolism (IEMs) and Newborn Screening" on September 10, 2016, at The M. S. University of Baroda, Pratapgunj, Vadodara, Gujarat.

Ahmedabad: A CME on Metabolic Disorders was held at Zydus Hospital, Near Sola Bridge, S.G. Highway, on July 10, 2016.

Jaipur: We organized a CME in association with Narayana Hrudayalaya Hospital on June 29, 2016, at Narayana Hrudayalaya Hospital.

Kota: We organized a CME in association with IAP and FOGSI, Kota, on May 22, 2016, with the theme: "Metabolic Disorders in Children - Creating Public Awareness - Role of Doctors."

Jaipur: We participated in and sponsored Thalassemia Day, organized by SEAIT, Prem Niketan Hospital, Jaipur, on May 8, 2016, at the Auditorium, Manav Seva Sangh, Ashram Marg, Jawahar Circle, Jaipur.

Jaipur: A Workshop on Pediatric Gastro Interventions was held at MG Hospital on April 24, 2016.

Mumbai: A CME on "All About Inborn Errors of Metabolism," organized by We Are Special - An initiative of Shubhlahari Prathisthan, was held at Sir H.N. Reliance Foundation Hospital and Research Centre on March 27, 2016.

Jaipur: We celebrated Rare Diseases Day on Monday, February 29, 2016, at Rajasthan Netraheen Kalyan Sangh.

Bangalore: We participated in and supported Race for 7, an awareness run organized by the Organization For Rare Disease India (ORDI), on February 28, 2016.

Jaipur: The First International Conference on Pediatric Rare Diseases and 17th National Conference of IAP Intensive Care Chapter (NCPCC 2015) was held at the B M Birla Science & Technology Centre from November 27 to 29, 2015.

Hyderabad: We marked IEM Day on November 21 and organized the first IEM Day event at the Luminous One Continent Hotel, Abids, on November 21, 2015.

Bangalore: A CME on Metabolic Disorders In Neonates took place at Cloudnine Hospital, Old Airport Road, on December 22, 2015.

Jodhpur: The 2nd National Conference of the Indian Academy of Medical Genetics was jointly organized by AIIMS Jodhpur, MCH MDM Dr S N Medical College Jodhpur, and IAP Marwar Branch Jodhpur on December 13, 2015.

New Delhi: An Awareness Programme for Rett Syndrome was held at Vardhman Mahavir Medical College & Safdarjung Hospital on October 25, 2015.

New Delhi: A Consultative & Policy Meet on Newborn Screening was organized by the National Neonatology Forum (NNF) on September 22, 2015, at the India Habitat Centre, Lodhi Estate.

New Delhi: A conference on Realizing the Potential of Rare Disorders in India was held at Residency Resorts, United Service Institution of India, Rao Tula Ram Marg, on September 8, 2015.

Mumbai: A Round Table Discussion on Newborn Screening was organized by the Perinatology Committee of the Federation of Obstetric and Gynaecological Societies of India (FOGSI) on August 6, 2015.

Ahmedabad: We participated in a Workshop on Perinatology at the Ahmedabad Management Association on June 28, 2015.

Jodhpur: We organized a CME on Rare Disorders / Wake-up Call on July 26, 2015, at Hotel Shriram Excellency.

Pune: We organized a Parents-Doctor Round Table Discussion on the "Hurdles of Managing Our Children Suffering by IEMs" on June 27, 2015.

Bangalore: A discussion on Inborn Metabolic Disorders Requiring Therapeutic Dietary Products was held at the Centre for Human Genetic Biotech Park, Electronic City Phase I, on May 18, 2015.

Bangalore: We participated in and supported the Organization for Rare Diseases India (ORDI), National Neonatology Forum of India (NNF), and Cloud Nine Hospital for a CME titled "Rare Diseases – A Practical Approach" at Gold Finch Hotel on April 5, 2015.

Jaipur: A Pediatric Gastro CME was held at Vivekanand Hall, Mahatma Gandhi Medical College & Hospital, on March 22, 2015.

Jaipur: We organized a symposium, in association with SEAIT, Prem Niketan Hospital, Jaipur, and the Organization for Rare Diseases India, on "Rare Diseases: Need of the Hour" on March 1, 2015, at the Auditorium, Manav Seva Sangh, Ashram Marg, Jawahar Circle.

Pune: PediGen 2015 was held at the Deenanath Mangeshkar Hospital & Research Center on February 14, 2015.

Jaipur: We organized and supported the Clinic for Rare Diseases, Department of Pediatrics, S M S Medical College, Jaipur, for a discussion on Newborn Screening for Inborn Errors of Metabolism at Ramada Hotel on January 15, 2015.

Udaipur-In association with Geetanjali Medical University, we organized a CME on "Newborn Screening for Inborn Errors of Metabolism and Genetic Disorders" at their auditorium on November 29, 2014. We also released our publication, Essentials of Inborn Metabolic and Genetic Disorders.

New Delhi: An awareness program for Rett Syndrome was held at GB Pant Hospital on October 12, 2014.

Hyderabad: We attended the International Conference on Inborn Errors of Metabolism (ICIEM) 2014 at the Hotel Taj Krishna on September 20–21, 2014.

New Delhi: The 2nd Newborn Screening Symposium took place at Amaltas Hall, India Habitat Centre, Lodhi Road, on September 14, 2014.

Ahmedabad: A CME on Practice Guidelines in Neonatal and Pediatric Liver, Metabolic, and GI Diseases was held at the Ahmedabad Management Association on July 27, 2014.

Jaipur: A CME on inborn errors of metabolism was organized by the National Neonatology Forum (NNF) Jaipur chapter at the Hilton Hotel on June 22, 2014.

New Delhi: The launch of the Organization for Rare Diseases (ORDIndia) occurred at the Constitutional Club of India on February 18, 2014.

Jodhpur: We organized a round-table discussion on "Newborn Screening: How to Begin" at Hotel Shriram Excellency on February 16, 2014.

Ahmedabad: The International Conference on Human Genetics (ISHG-2014) was held at the Ahmedabad Management Association on January 24, 2014.

Year 2013
Lucknow: We participated in the seminar "Frontiers in Medical Genetics and Hands-on Workshop on DNA Diagnostics 2013." We also sponsored a newborn screening (NBS) panel discussion on November 28, 2013, at Sanjay Gandhi Post Graduate Institute of Medical Sciences.

New Delhi: We attended the 8th Asia Pacific-Regional Meeting of the International Society for Neonatal Screening (8th ISNS) at Jawaharlal Auditorium, All India Institute of Medical Sciences (AIIMS), on September 28, 2013.

Nashik: We participated in the Sujanan Conference, hosted by the Nashik Obstetric and Gynaecological Society, at The Gateway Hotel Ambad on September 1, 2013.

New Delhi: A discussion on "Inborn Errors of Metabolism: Making Metabolic Products Available as Life-Saving Medical Foods" was held at Hotel Hans Plaza on August 23, 2013.

New Delhi: We attended the 2nd Conference on Inborn Errors of Metabolism (IEMCON) at the Auditorium, Dr. R.M.L. Hospital & PGIMER, on April 7, 2013.

Jaipur: We organized a round-table discussion on "Inborn Errors of Metabolism: Can We Save Newborns?" at Hotel Lords Plaza on March 10, 2013.