Genetics conference at SRM University in Chennai(GMDMM 2012) on the 27th,2012.
Newborn Screening Symposium 2012 at Kokilaben Dhirubhai Ambani Hospital (KDAH) Mumbai. on 30Sep 2012
Round Table Discussion on Inborn Errors of Metabolism/Can WeSave Newborns at Hotel Lords Plaza jaipur on 10 March 2013
Nashik- Sujanan Conference,Hosted by Nashik Obstetric and Gynaecological Society at The Gateway Hotel Ambad on 1Sep 2013
Panel Discussion on 28th November 2013 at Sanjay Gandhi Post Graduate Institute of Medical Sciences Lucknow
Round Table Discussion on Newborn Screening - How to begin at Hotel Shriram Exelcellency. Jodhpur ON 16FEB 2014
New Delhi-2nd Newborn Screening Symposium at Amaltas Hall, India Habitat Centre, Lodhi Road on 14September 2014
Book Released and CME on Inborn Metabolic and Genetic Disorders at Geetanjali Medical University, Udaipur on 29 NOV 2014.
Discussion on Newborn screening for Inborn Errors of Metabolism organized In association with (Clinic for Rare Diseases ) Department of Pediatrics S M S Medical College Jaipur at Ramada Hotel on 15 Jan 2015at Jaipur
Rare Diseases Day-2015 -Need of the Hour On 1st March 2015 Auditorium Manav Seva Sangh, Ashram Marg, Jawahar Circle, Jaipur
Rare Diseases Day on 1st march 2015 2015-jaipur
CME: Rare Diseases “ A Practical Approach at Gold Finch Hotel, on April 05, 2015 Bangalore.
CME at Jodhpur on 26 July 2015
CME at Jodhpur on 26 July 2015
A Meeting on Newborn Screening organised by(FOGSI) at Mumbai on 6 august 2015
Celebrate Rare Diseases day on 29 Feb2016 Monday at Rajasthan Netraheen Kalyan Sangh Jaipur
Participated and support Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) on 28 Feb 2016
Organized CME in association with IAP and FOGSI, kota on 22 may 2016,
Organized CME in association with Narayana Hrudayalaya Hospital, on 29 June 2016,at Narayana Hrudayalaya Hospital Jaipur .
Organized CME in association with Narayana Hrudayalaya Hospital, on 29 June 2016,at Narayana Hrudayalaya Hospital Jaipur.
Participated in CME on Metabolic Disorders at Zydus Hospital Nr. Sola Bridge, S.G. Highway,on 10 July 2016 at Ahmadabad.
Participated in CME on Metabolic Disorders at Zydus Hospital Nr. Sola Bridge, S.G. Highway,on 10 July 2016 at Ahmadabad.
CME on Inborn Errors of Metabolism (IEMs):AND NewBorn Screening on 10 September-2016 at Vadodara,Gujarat.
Newborn Screening Symposum-2016 at Hyderabad on 11th sep 2016
Newborn Screening Symposium-2016 at Hyderabad on 11th sep
CME on Inborn Errors of Metabolism (IEMs)AND Newborn Screening on 15 September-2016 at Jaypee Hospital Sector-128, Wish Town, Gautam Buddh Nagar, Noida, Uttar Pradesh
New Delhi.Awareness meet for Rett Syndrome at Ram Manohar Lohia Hospital Baba Kharak Singh Marg.on 16 Oct 2016
2nd IEM DAY on 20 Nov 2016 at Jaipur
IEM DAY -2016 on 20th Nov
SYMPOSIUM ON: INBORN ERRORS OF METABOLISM-A CLINICAL APPROACH at Bharati Hospital Auditorium on Sunday, 27th November 2016
Parents Meet on SYMPOSIUM ON: INBORN ERRORS OF METABOLISM-A CLINICAL APPROACH at Bharati Hospital Auditorium on Sunday, 27th November 2016
Conference of Indian Academy of Pediatrics (PEDICON 2017) on 21 Jan 2017 at , Bangalore,India.
Rare disease day 2017 ON 28TH FEB at Jaipur
Merdindia facilitated by union minister Shri mahesh sharma
CME ON INBORN ERROR OF METABOLISM at Conference Hall, New Pediatric Building, Department of Pediatrics, IMS-BHU on 26 March 2017
Navi Mumbai - CME on Newborn Screening adding Quality; changing Lives on 2nd April 2017
Manipal-Indo- German Metabolic Meet on 24th of September, 2017, at Dr. TMA Pai Hall
IEM Awareness program of north zone on 28 October 2017 at India Habitat Centre , Diet 4 Life is the project started by Food Safety Standards Authority of India, Government of India.
3rd IEM Awareness day and 2nd Saved Babies DayON 28TH MARCH 2018
Rare Diseases day 2018 ON 25TH FEB
3rd National Patients Advocacy Group Leader Meeting (PAG Meeting) on 29th April 2018 jaipur to discussed National Rare disease policy
Participated at FOGSI ISPAT Conference on Genetics & Foetal Medicine to be held at Hotel Lemontree Premier Patna, on 17th June 2018.
CME with IAP, FOGSI , JLN Ajmer RARE DISORDERS /WE CARE FOR RARE.30 June 2018
Ajmer CME-30 JUNE -2018
Awareness by Newborn Screening CME:ON 2ND SEP 2018
Awareness Program for Rare Disease in Children ON 6TH OCT 2018
Awareness Program for Rare Disease in Children at Surya Hospital Jaipur ON 6TH OCT 2018
Awareness Program for Rare Disease in Children at Surya Hospital Jaipur ON 6TH OCT 2018
Organized 4th IEM day on 21 November 2018 at golden tulip hotel with press conference.
CME on Inborn Errors of Metabolism ON on 9dec 2018 sunday at AMA (Ahmedabad Management Association)
IEM DISEASE AWARENESS DAY at All India Institute of Medical Science, New Delhi on 15 dec 2018
Participated as panelists for apanel discussion on "Care for Rare" during ISIEM 2019 on 19 jan 2019
rare disease day 2019 ON 28TH FEB
rare disease day -28 FEB 2019
rare disease campaign at bikaner@3rd march 2019
Participated Rare Disease Awareness RUN/WALK RACE FOUR 7 AT IGIB OKHLA on 17 march 2019
nbs scenario in India
Stakeholders from parents on Seventh International Conference on Rare and Undiagnosed Diseases at delhi 13 april 2019
Awarenness program at Indore on 1st sep 2019
Awarenness program at Indore on 1st Sep 2019
Newborn screening awareness program at C.k Birla Hospital on 25 September 2019
Newborn screening awareness program at C.k Birla Hospital on 25 September 2019
Health awareness program under Service week of lion club at Eternal Hospital on 5 October 2019
Obsrved Inborn Errors of Metabolism Day with jaipur parents on 21st novmber,2019
Orgnized IEM DAY with kind support by Nelson Mother and Child Care Hospital , NNF , IAP, on 24th NOV 2019 at nagpur
Orgnized IEM DAY with kind support by Nelson Mother and Child Care Hospital , NNF , IAP, on 24th NOV 2019 at nagpur
Foundation Ceremony of MISSION NEEV(Neonatal Early Evaluation Vision ) at Auditorium , Maulana Azad Medical College On 6 January,2020
Foundation Ceremony of MISSION NEEV(Neonatal Early Evaluation Vision ) at Auditorium , Maulana Azad Medical College On 6 January,2020
Workshop and awareness program on Rare disease on 25 Jan 2020 AT auditorium SDMH Jipur
Workshop and awareness program on Rare disease on 25 Jan 2020 AT auditorium SDMH Jipur
Rare Disease Awareness at pune on 16 Feb2020
Rare Disease Awareness at pune on 16 Feb2020
Rare Disease Awareness at Bangalore on 22 Feb 2020
Rare Disease Awareness at Bangalore on 22 Feb 2020
Rare Disease Day at Lucknow on 29 Feb 2020
Rare Disease Day at Lucknow on 29 Feb 2020
participated in the webinar- Newborn Screening for Obstetricians: Awareness to Implementation 3RD JULY 2020
IEM DAY 21 nov 2020
Webinar 20/12/2020
Rare Disease Newsx ON 21TH FEB 2021
Rare Disease Day -jaipur ON 28TH FEB 2020
Rare Disease Day -Jaipur 28 feb 2021
Rare Disease Day -Jaipur 28 feb 2021
3rd July 2021 Participated in Webinar on 6th Annual International Conference of the Board of Genetic Counseling
5th July 2021 webinar on Indian contribution to disease gene discovery organized by SGPGI in memory of Late Dr SS Agarwal.
5th July 2021 webinar on Indian contribution to disease gene discovery organized by SGPGI in memory of Late Dr SS Agarwal.
IEM DAY KOLKATTA 21st NOV 2021
21November 2021 Inborn error of metabolism day organized Seminar and webinar with IEM support trust and ORD INDIA at Kolkata
21November 2021 Inborn error of metabolism day organized Seminar and webinar with IEM support trust and ORD INDIA at Kolkata
Rare diseases day 2022 ON 27 FEB
Rare diseases day 2022 ON 27 FEB
Mission neev 28th April 2022
The thalassemia day 8th may 2022 at mg hospital jaipur
Give new clothes to newborn babies at zanana hospital jaipur on 1st June 2022
Service activitie at zanana hospital jaipur on 1st june 2022
Health care seminar at Forties hospital jaipur on 31 July 2022
am at Forties hospital jaipur ON 31TH JULY 2022
आजादी का अमृत महोत्सव on 14 August 2022
Health Awareness Program for Girls ON 27TH AUG 2022
Health awareness in Girls on 27th August 2022
Participated PAG meet at Delhi host by IEM SUPPORT CHARITABLE TRUST ON 4TH SEPTEMBER 2022
Participated PAG meet at Delhi host by IEM SUPPORT CHARITABLE TRUST ON 4TH SEPTEMBER 2022
Cancer Suffering Children recreation activities ON 22 SEP 2022
Cancer Suffering Children recreation activity on 22 September 2022
Newborn screening awareness month meet on 27th September 2022at jaipur
Newborn screening awareness webinar on 29sep 2022
Newborn screening awareness webinar on 29th September 2022
Child health awareness program at jablpur on 2nd October 2022
am at jablpur on 2nd oct 2022
Visited ,department of biochemistry IEM Lab ,Kasturba Medical Collage Manipal on 30th oct 2022
IEM MEET AT KMC MANIPAL ON 30TH OCTOBER 2022
Participated as Speaker on IEM METABOLIC MEET om 30th oct 2022
IEM DAY on 20th November 2022 at Mysore
Inborn errors of metabolism day at jaipur on 21st November 2022 at Mahila chikitsalaya jaipur
Inborn errors of metabolism day at gangori government hospital jaipur on 22nd November 2022
Participated as a panelist on Rare disease summit on 25th November 2022
Inborn errors of metabolism day at Mysore on 20th November 2022
Health awareness seminar focused on cancer and newborn screening awareness ON 18TH DEC 2022
Health awareness program at HCG hospital jaipur on 18th dec 2022
Race for rare disease Awareness at kochi on 19th February 2023
Awareness talk at kochi on 19th February 2023
Race for rare diseases Awareness at asansol on 26th feb 2023
Rare Disease Day seminar at asansol on 26th February 2023
Rare Disease Day celebration organized by MOHFW at AIIMS Delhi on 28th February 2023
Rece for rare diseases Awareness at Kolkata, Stadel salt lake on 5th march 2023
Race for rare diseases Awareness at Kolkata on 5th march 2023
Warm up for race for rare diseases Awareness at Kolkata on 5th March 2023
Rare Disease Day at AIIMS Delhi on 28th February 2023
Race for rare diseases Awareness at AIIMS Delhi on 12th March 2023
Race for rare diseases Awareness at AIIMS Delhi on 12th March 2023
With key people of Lucknow event on 19th March 2023
Race for rare diseases Awareness at pune on 26th March 2023
Merdindia foundation members at pune awareness program on 26 march 2023
Rare Disease Patient dancing at pune on 26 march 2023
Umang school jaipur on 27th March 2023
Physiotherapy items distribution at umang school jaipur on 27th march 2023
Organized webinar focused on hurdles of treatment and othe issues on 1st April 2023
Ferto Genetics 2023, Varanasi on 29th April 2023
Participated as panelists on Newborn screening Session at Varanasi on 29th April 2023
Work shop National Policy For Rare Disease on 13th June 2023
Genetics seminar at SGPGI Lucknow on 5th july 2023
International Conference and workshop at bhopal, Radisson bhopal on 22nd July 2023
Healthy Eyes SEMINAR on 6th Aug 2023
Celebrated Independent day with special children at Kolkata ,event organized by IPSW and lion club Kolkata south and other groups on 15th aug 2023
Fellowship with lion club Kolkata south on Independent day 15th aug 2023 day
Poster distribution on 1st day of sep 2023 of newborn screening month September 1st
Awareness Posters distribution on Newborn Screening month on 2nd September 2023
On Newborn Screening awareness month, Poster distribution activity on 4th September 2023
Distribution of Posters on Newborn Screening awareness month September on 5th 2023
Nutrition kit distribution activity for suffering children on 7th sep 2023
Awareness campaign at Jk loan hospital on 8th sep 2023
Awareness program at Yashoda hospital and Research Centre Ghaziabad on 16th September 2023
Newborn screening awareness at C.k Birla Hospital jaipur on 19th sep 2023
We are dedicated to our cause to Implementation of newborn screening as a Policy at bhopal AIIMS on 29th sep 2023
Journey of newborn screening at bhopal AIIMS SEMINAR ON 29TH SEP 2023
Seminar on Newborn Screening at bhopal AIIMS on 29th sep 2023
Magic 🎩 show for children AT MG HOSPITAL JAIPUR ON 6TH OCT 2023
Our foundation along with lions and dedicated for healthy children healthy nation , PROGRAM AT M G HOSPITAL JAIPUR ON 6TH OCT 2023
Inborn errors of metabolism day at pondicherry on 19th November 2023
Inborn errors of metabolism day at jipmer pondicherry ON 19TH NOV 2023
Rare Genetic Diseases Research Summit (REDRESS)at bangalore on 23rd nov 2023
Newborn screening awareness seminar at Ratnagiri on 1st December 2023
Newborn screening awareness program at Ratnagiri on 1st December 2023
Newborn screening awareness seminar at sindhudurg maharashtra on 2nd December 2023
Newborn screening awareness seminar at sindhudurg maharashtra on 2nd December 2023
Promote our mission healthy children,helthy nation, Distributed new woolens clothes to newborn at j k loan hospital jaipur on 19th December 2023
Purple fest at panjim Goa on 9th January 2024
International purple fest at panjim goa on 9th January 2024
Participated in webinar on Focused on Rare disease Drugs development on 17th January 2024
ISHG-2024 at Ahmedabad on 23rd January 2024
ISHG-2024-newborn screening Session on 24th jan 2024
Bikaner seminar on Healthy Children Healthy Nation on 11th February 2024
Helthy children, Healthy nation seminar at bikaner on 11th feb 2024
Race for rare diseases Awareness at kozhikode on 25th February 2024
Smile giving encourage
Observed rare diseases day at Nirmal Vivek Special children school jaipur on 28th February 2024
Rare Disease Day with special children with magic 🎩 show on 28th February 2024
Unique symbolic Rare Disease Awareness Posters gallery at jaipur on 3rd march 2024
Unique symbolic Posters Gallery for rare disease Awarenesson 3rd march 2024
Delivered speech on Genetics Counselors seminar at coimbatore on 30th March 2024
Genetics Counselors Bridge between parents and medical professionals, conference at coimbatore on 30th March 2024
Rare Disease Award on 25th April 2024on DNA Day celebration
PAG meet at Bengaluru on 26th April 2024
Thalassemia Day 8th may 2024
Webinar on NIPS (Non-Invasive Prenatal Screening) on 13th may 2024
At Agra on 19th may 2024
Healthy children healthy nation seminar at Agra on 19th may 2024
CME at Ahmedabad focused on Genetics testing and new born Screening awareness at Ahmedabad on 26th may 2024
Amritsar fogsi conference on 1st June 2024
पौधारोपण for Awareness for rare diseases and Newborn screening at fogsi conference Amritsar on 1st June 2024
Healthy children healthy nation seminar at Bharuch Gujarat on 23rd June 2024
Healthy children healthy nation seminar at Bharuch Gujarat on 23rd June 2024
webinar focused on Framework for Ayurgenomics in Rare Diseases, organized by IndoUSrare
Cancer Awareness seminar at Manipal hospital jaipur on 24th july
Awareness seminar at Manipal hospital jaipur on 24th july 2024
Campaign for healthy children healthy nation On Newborn Screening awareness month on 4th September 2024
Distributed pamphlets on Healthy Children Healthy Nation On 10th September 2024
Unique activity to distributed pamphlets on Healthy Children Healthy Nation
On Newborn Screening awareness month, distributed Posters at Forties, EHCC and Rajasthan hospital jaipur on 16th September 2024
On Newborn Screening awareness month, distributed Posters at Forties, EHCC and Rajasthan hospital on 16th September 2024
Awareness campaign for healthy children healthy nation at hope hospital on 17th September 2024
Awareness campaign at SDMH On 17th September 2024
Awareness campaign at Rungta hospital on 17th September 2024
Campaign for healthy children healthy nation On Newborn Screening awareness month on 18th September 2024
Participated as a Panelist on The Power of Collaboration : How Multi stakeholder Partnership can drive efficient rare disease management on ISIEM 2024 Jaipur, Rajasthan.
panel discussion on ISIEM Jaipur 2024
Smile and satisfaction on our face to see ,on 24th September 2024
Distributed Posters for healthy children healthy nation on 25th September 2024
Oath taking for Universal newborn screening in our nation On ISIEM Jaipur 2024 on 19th September 2024
Newborn screening awareness seminar at Murshidabad on 26th September 2024
panel discussion as a on Newborn Screening awareness organized by Amritsar Academy of Pediatrics and Indian Society of prenatal diagnosis and therapy, at government medical college Amritsar
Work shop on Rare Diseases patients and Caregivers mental and physical health on 9th November 2024
Indo us rare disease summit 2024 on 17th November
Inborn errors of metabolism day at bubnashwer on 21st November 2024
ICBD 2024 at jaipur on 30th November
Distributed woollens to newborns at gangori hospital jaipur on 4th December 2024
Healthy children healthy nation distributed new woolens clothes at PBM hospital bikaner on 3rd January 2025
Samvaad at jaipur on 4th January 2025
Commendation Award from GAPIOon 18th January2025 at Mysore.
Woolens clothes distribution at Mahila Chikitsalaya Sanganeri Gate jaipur
Continue efforts for healthy children healthy nation, participated CME on caring both end of cord organized by RHL BABYLON, NARCHI,IAP JAIPUR &NNF RAJASTHAN at Rajasthan hospital jaipur on 9th February 2025
CME ON Newborn Screening at Hilton hotel jaipur on 21st February 2025
Race for rare diseases Awareness at chandigarh on 23rd February 2025
Great full with PGIMER chandigarh people who always support children with rare diseases
Rare Disease Day celebration at Rajasthan international Centre at jaipur on 28th February 2025
Rare Disease Day celebration at Approach Autism Society with magic show and music program on 28th February 2025
patients Summit 2025 at Delhi on 8th March
Parent Support Group meet at patient Summit at new delhi on 8th March 2025
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