First initiative in India to provide informative support to parents
Mission
The mission of MERD INDIA FOUNDATION is to promote awareness about Inborn Errors of Metabolism and
to provide Moral as well as Informative Support to the parents of such children
and to campaign for compulsory newborn screening in India
About MERD INDIA FOUNDATION (A 'Not for Profit Company' Registered under
Section 8 of the Companies Act, 2013)
Metabolic Errors and Rare Diseases Organisation of India (MERD India) was conceived by two parents
- Vikas Bhatia and Poonam Bhatia ,who wanted to set up a parent support and
advocacy organization in India. The vision was to have a forum of like-minded individuals who can
promote & help spreading awarenesses about significance of early detection of Inborn Errors of
Metabolism and Rare Diseases, and thereby save and support thousands of lives.
Founder Member
Vikas Bhatia graduated in commerce,
Area of expertise :
Handloom Emporium
MERD INDIA FOUNDATION
Retail Business
Owner of Handloom Emporium
Saree Business at Jaipur, Rajasthan
Inborn errors of metabolism
Got involved in promoting awareness for Inborn Errors
of Metabolism & Rare Genetic Disorders after his third son's death. All the three
were born with rare metabolic disease Pyruvate Carboxylase Deficiency . After that
incident, he decided to help parents who are facing the similar kind of problem.
Now his life's objective is to provide moral and informative support to the
parents of IEMs suffering children and to campaign newborn screening in India.
Disclaimer: -This website and support group MERD INDIA FOUNDATION
is only to provide basic information and moral support to the parents of children with inborn errors
of metabolism and rare genetic diseases. The information provided in this website has been sourced
from various websites and articles. By no means we claim to be exhaustive or up-to-date. For this
parents are requested to contact their physician and geneticists/ metabolic expert. We do not
provide any genetic counseling or clinical advice.
Inborn Errors Of Metabolism In India | Newborn Screening In India | Support Group For Inborn Errors Of
Metabolism In India
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